Overview

Title
Mental Health Recovery Tool

Lead agency
Endeavour Mental Health Recovery Clubhouse

Project overview
Endeavour Clubhouse members co-designed a person-centred, recovery-oriented interactive tool to support people with lived experience of mental health issues to better manage their road to recovery. This was in concept only and they are seeking funding to support the development of the app. 

Actions supported by the Lived Experience Framework

  • Co-design and co-production: Co-design mental health service environments (including emergency departments, inpatient and forensic units, community mental health and other specialist facilities) with people with lived experience of mental health issues and caring, families and kinship groups to provide care in the most respectful environment possible
  • Quality improvement: Use recovery-oriented service assessment tools and outcome measures (World Health Organisation Disability Assessment Schedule and Recovery Oriented Service Self-Assessment Toolkit)
  • Capacity building: Create and support opportunities for people with lived experience of mental health issues and caring, families and kinship groups to develop leadership capabilities.

Challenge

The Clubhouse set out to develop a tool that could improve initial assessment of members’ needs and goals, and record and report progress of their journey, capturing fluctuations through the recovery journey. 

Response

A co-design group, made up of a majority of people with lived experience of mental health issues, was formed to lead the project. This meant recovery was viewed through the lens of lived experience rather than from a clinical perspective.

A co-design approach was undertaken throughout the project; 12 people with lived experience of mental health issues, carers, peer workers, and social work students and support workers co-designed a wellbeing app.  

Participants met at Endeavour Clubhouse for seven four-hour workshops to plan and design the tool. The Clubhouse is a comfortable place for them as they know the environment and the staff. Feeling safe allowed meaningful input and open dialogue.

 

All ideas and opinions were listened to respectfully and applied or challenged gently, creating room for personal capacity building. Lived expertise, skill, insight and information of Clubhouse members was highly valued. Participants took ownership of and were paid for their contributions. Following member feedback, the original plan for a recovery tool pivoted to the co-design of a recovery app. 

The co-design group developed a concept for a recovery tool that captures all elements of recovery (mind, body, health and connection). It would create a ‘final destination’ for a journey through recovery and include prompts of wellbeing activities, goal setting and tracking, mood mapping and tracking and journaling a recovery plan.

This tool could allow people to gain information about keeping well, find help when they need it, set goals and track their recovery journey. 

Evaluation process

  • Feedback was sought in an end of project evaluation, weekly sessions, and via small groups. 
  • This led to suggested amendments to the flowchart and legend, and feedback learnings below. 

Outcomes

Organisational change:

  • Co-created a tangible concept for an app
  • Reinforced Endeavour Clubhouse’s ‘you are not alone’ culture, through practice.

Paid opportunities to participate, co-design and co-lead:

  • Paid people for participation to develop a recovery tool, for contributions large and small
  • Maintained attendance of participants, through their passion and sense of achievement.

Education and leadership:

  • Self-organised: the team of Clubhouse members, carers, peer workers, support workers, student workers and social workers worked together to set their development agenda
  • Participants realised the common ground of their recovery journeys, with their peers
  • Participants increased their understanding of each other and themselves, developing the app

​​​​​​​Benefits for other organisations or settings:

  • Collaboration and self-management: benefits at an individual and relationships level between peers with lived experience, carers, family and kinship groups, and workers
  • What works and what doesn’t work: for recovery, through listening and applying the stories and perspectives of people with lived experience of mental health issues and caring.

 

Feedback on co-design learnings:

  • Small groups: allowed easier decision-making, stress-free discussion and group support
  • Supportive, encouraging environment: built individual confidence, boosted participation
  • Co-design with open agenda: supported collaboration, increased the group’s ownership
  • Participants: showed excitement as they recognised the ‘real need’ for this recovery tool.

Challenges to the project:

  • Small groups made minimal progress if a key member was absent; small groups may have reduced the lived experience contribution of people who were in other small groups
  • Direction is needed for co-design: progress was slowed as a result, for three meetings
  • Difficulty integrating people later: project work stops as they require a background explanation.

Next steps

Endeavour Clubhouse has approached developers for costing and is considering options to develop the tool as a web app and a mobile app, however this development will require funding.

A name for the recovery tool is not finalised but seven names were proposed. Endeavour’s policy to develop and name the recovery tool aligns with a systems level action of the Lived Experience Framework: policy, planning, service design, monitoring, evaluation and improvements are done collaboratively and transparently through co-design and co-production.

The Endeavour Clubhouse Coordinator is keen to explore holding a hackathon or similar co-development workshop event and proposed discussions for early 2020 to allow sufficient planning and exposure with all stakeholders, to involve stakeholders widely to plan and promote a co-development event.

References

1.    Endeavour Clubhouse Lived Experience Framework Project Report
2.    Endeavour Clubhouse App Map and Legend – Concept Map